Ian is 16 years old, an only child, and lives with his mom in a suburban neighborhood.

He loves to play basketball and has a lot of friends on his local team. They have lots of family friends. When he was 2 years old, his father was diagnosed with ALS. They always talked about it as a family, so his dad having ALS was just a normal thing. In fact, ALS is just about all Ian knows. The disease progressed fast at first, then it really slowed down. Ian’s dad used a power wheelchair and other assistive devices for most of Ian’s childhood, but was still able to work for many years. He was a computer engineer and had a room full of technology in their home. He used to show Ian all the wires, conductors, and complicated machines. Ian wanted nothing more than to be like his dad; they were very close.

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